Copii-cu-autism.MyForum.ro :: CUM MAI MERGE?...

Trimis: 03/02/2007 17:59

cu dieta fara gluten? A trecut ceva timp de cand ati inceput; ce zic puisorii vostri?

Trimis: 03/02/2007 18:02

Eu pot sa o respect doar pe cea fara cazeina...din pacate. wink3

Trimis: 03/02/2007 18:27

ti s-a facut mila? :)

Trimis: 05/02/2007 10:38

Buna
Iata ce mi-a trimis mamica din Italia:

Aceasta-i povestea unui copil autist, care dormea putin si care avea crize violente, cu crize epileptice incepute cand avea 7 ani, cu diferite tratamente anti-epileptice.... La varsta de 10 ani incepe dieta fara-gluten si fara-caseina, care a rezolvat definitiv crizele epileptice (nu mai ia absolut deloc medicamente) si crizele violente, care au disparut!!!

http://seattlepi.nwsource.com/health/302360_olympichouse03.html

“Autistic diet' getting a closer look”

Wheat-, dairy-free plan proving successful for some

By CHERIE NEGRU
P-I REPORTER

When he was 3 years old, Matthew Sebastian was diagnosed with autism.

Four years later, he began having seizures, which are much more common in autistic children than in the broader population. Doctors told his parents that by the time their son reached puberty, his seizures would get worse and he would have to wear a helmet to protect his head.

High doses of two prescription anti-seizure medications controlled the attacks, but the effects of his autism still kept the small boy in constant motion. He slept poorly and displayed multiple violent daily outbursts, which eventually made him too dangerous to himself and his family to live at home.

Sebastian moved from Federal Way to a home in Seattle, which cared for autistic children in a residential setting. It was there, at the age of 10, that he received what his mother calls the treatment that saved her son's life.

Dubbed by some as the "autism diet," it is a gluten- and casein-free way of eating, often used by people diagnosed with the digestive disorder celiac disease. Gluten products such as wheat, rye and barley are eliminated, as are dairy products, which contain the protein casein.

For eight weeks, Sebastian was weaned off of his anti-seizure medication and placed on the diet. Now 20, he has been seizure-free and drug-free for the past 10 years. His violent behavior stopped.

"Matthew is the complete opposite of what he was before," said his mother Janet Sebastian. "That's why the diet works. His behaviors decreased dramatically over the years and now he's positive and happy."

Why the diet seems to work isn't completely understood. One theory involves the "leaky gut syndrome," in which the autistic child's body isn't able to process proteins found in wheat and dairy products, said Gary Stobbe, medical director of Seattle's Autism Spectrum Treatment and Research Center, a non-profit organization that diagnoses, treats and manages people with autism. The undigested chunks of protein get into the bloodstream and affect the brain. Another theory is the body's immune system is reacting to the proteins in the body.

"Nothing is determined for certain, and there is no set approach with the diet," he said. "In my practice, it is something we encourage in younger kids or if we see a kid not making progress with more conventional therapies."

Stobbe said for some children, especially the more severe autism cases and those with physical complaints, the diet works well. They are calmer, have better attention spans and have less severe behavioral disturbances.

Still no one knows whether this will work in the long term. So far, only anecdotal evidence from parents is available.

One study under way at the University of Rochester Farmaceutic Center in New York looks at the effects of the diet in autistic children between the ages of 2 1/2 and 4 1/2. Sponsored by the National Institute of Mental Health, it began in 2004 and should be completed in 2008.

Dr. Geraldine Dawson, director of the University of Washington's Autism Center, is waiting for data from more studies before she'll recommend the diet to her patients, but tells parents who have decided to try it to make sure a nutritionist is involved. She said about half the children seen at the center are on the diet, which has worked for some, and not others.

"While we wait to find out more, parents should watch their children," she said. "You end up restricting what they're eating and some children are suffering nutritionally."

But Sebastian and his family have no doubts. Sebastian now lives at Olympic House, opened in June in North Seattle for those with autism or celiac disease who are on the diet. The house is a part of Alpha Supported Living Services in Seattle, which has 16 homes for disabled adults.

Sebastian was joined by Jacob Al-Hakim, 24, who is also autistic and has celiac disease. Since being put on the diet, his mother, Cheryl Gere, said he is calm and making eye atingere with people. Although he doesn't talk much, if at all, he interacts with people and is more aware, she said.

"Simply what they're eating could change their lives," she said.

A nutritionist helped fabricate a rotating meal plan involving a main dish of pork, chicken, beef or fish accompanied by rice, fruit and vegetables. The main dishes are served for both lunch and dinner and changed each day. A rotating staff of at least two people is at the house 24 hours a day and has been trained on what and how to prepare the limited diet.

Gere buys groceries for the house once a week at Central Market in Shoreline and spends about $150 to $200, using money both men receive from the state and their part-time jobs that is allocated for food.

At the grocery store, she can't buy citrus, apples, potatoes, avocados, peppers or tomatoes. She stocks up on rice and rice cakes, yams, bananas and meat. They need particular deodorant and shampoo. The tiniest cheat on the diet can cause behavioral problems.

"At one point on his medication, he never left the floor of his room; he was almost comatose," she said of her son. "He sings with us now. He's awake."

Sebastian and Al-Hakim's families say the diet brought back to them sons they thought were lost to the behavioral effects of autism. Sebastian, never without his dog, Holly, is a gold medalist in the Singular Olympics and works part-time at a toy store. Al-Hakim recently ice skated for the first time.

"When he was born I wondered what he would become," Janet Sebastian said. "Look at him now."

ABOUT AUTISM

Autism, and the broader category of Autism Spectrum Disorders, is a lifelong neuro-developmental disorder initially affecting people in the first few years of life. Autism is defined by significant impairments in social interaction and communication and the presence of unusual behaviors and/or restricted interests. Autism occurs in all racial, ethnic and socioeconomic groups and is four times more likely to occur in boys than girls.

Source: Autism Spectrum Treatment and Research Center

Trimis: 06/02/2007 10:24

Anca poate se gaseste cineva sa ne traduca please

Beba nu manaca nimic fara paine am lasat-o flamanda o zi intreaga,nu pune nimic in gura... giveup

Trimis: 06/02/2007 13:14

Imi dau seama; si al meu (banuit de malabsorbtie) a trebuit ( :-P

sau ar fi trebuit) sa tina o perioada regimul asta; am incercat sa-i inlocuiesc painea cu mamaliga.... vezi sa nu! A preferat sa nu mai manance nimic, vreo doua zile; in momentul asta cred ca i s-au dres si matele, si a inceput dupa aceea in ritm "normal" - adica asa cum voia el... :wall:

E incapatanat...